Researcher Details |

Aisling De Paor

Dr. Aisling de Paor joined the School of Law and Government in 2014. She was previously a part- time Lecturer in Law at NUI Galway (2009- 2014), lecturing modules including Health Law and Policy, and Genetics, Disability and the Law. She is a former Irish Research Council Scholar and former Ph.D. candidate at the Centre for Disability Law and Policy at NUI Galway. In 2013 Aisling defended her Ph.D., entitled ‘Advancing Science and Controlling the Misuse of Genetic Information in Employment and Insurance – Towards an Effective European Union Regulatory Framework.’ Aisling graduated from NUI, Galway with a B.C.L. in 2005, and graduated from University College Cork with LL.M. in 2006. She is a qualified Solicitor and trained in a large commercial law firm in Dublin (from 2006 to 2009), having specialised in Employment Law and Commercial Litigation for the majority of her traineeship. She has also worked as a Research Assistant at the Centre for Disability Law and Policy (2009-2010). Aisling is an honourary fellow and affiliated researcher with the Burton Blatt Institute, Syracuse University, New York. She regularly collaborates with this Institute and was a visiting scholar at this here in October 2012 and May 2014.

Book

	Year	Publication
	2017	Dr. Aisling de Paor (2017) Genetics, Disability and the Law - Towards an EU Legal Framework. New York: Cambridge University Press.
	2014	Dr. Aisling de Paor (2014) Genetic Discrimination: Transatlantic Perspectives on the Case for a European Level Legal Response. : Routledge.

Book Chapter

	Year	Publication
	2024	Aisling de Paor; Charles O'Mahony (2024) 'Implementation of the UN Convention Art. 12 on the rights of persons with disabilities in Ireland' In: Models of Implementation of Article 12 of the Convention on the Rights of Persons with Disabilities. London : Routledge.
	2016	Dr. Aisling de Paor (2016) 'Disability and Genetics – new forms of discrimination?' In: Routledge Handbook of Disability Law and Human Rights. London : Routledge.
	2015	Dr. Aisling de Paor (2015) 'Genetic Discrimination in Employment: The Relevance of the United Nations Convention on the Rights of Persons with Disabilities' In: Charles O'Mahony & Gerard Quinn(Eds.). The United Nations Convention on the Rights of Persons with Disabilities: Comparative, Regional and Thematic Perspectives. London : Intersentia.
	2014	Dr. Aisling de Paor and Prof. Noel Lowndes (2014) 'Tracing the history, evolution and future orientation of genetic science and technology' In: Gerard Quinn, Aisling de Paor & Peter Blanck(Eds.). Genetic Discrimination - Transatlantic Perspectives on the Case for a European Level Legal Response. London : Routledge.
	2014	Prof. Peter Blanck and Dr. Aisling de Paor (2014) 'US legislative and policy response: Some historical context to GINA' In: Gerard Quinn, Aisling de Paor & Peter Blanck(Eds.). Genetic Discrimination - Transatlantic Perspectives on the Case for a European Level Legal Response. London : Routledge.
	2014	Dr. Aisling de Paor (2014) 'Employment practices in a new genomic era: Acknowledging competing rights and striking a balance' In: Gerard Quinn, Aisling de Paor & Peter Blanck(Eds.). Genetic Discrimination - Transatlantic Perspectives on the Case for a European Level Legal Response. London : Routledge.

Peer Reviewed Journal

	Year	Publication
	2024	Diya Uberoi, PhD; Gratien Dalpé, PhD; Katherine Cheung, MA; Emma Kondrup; Nicole Palmour, PhD; Thalia Arawi, PhD; Mykhailo Arych, PhD; Miguel A. Ramiro Aviles, PhD; Carmen Ayuso, MD, PhD; Heidi B. Bentzen, LLM; Katherine Blizinsky, PhD; Yvonne Bombard, PhD; Subhashini Chandrasekharan, PhD; Brian Hon Yin Chung, MD; Aisling de Paor, PhD; Megan Doerr, MS, LGC; Edward S. Dove, PhD; Charles Dupras, PhD; Palmira Granados-Moreno, PhD; Dov Greenbaum, PhD; Hrefna D. Gunnarsdóttir, PhD; Hazar Haidar, PhD; Chih-hsing Ho, PhD; Saumya S. Jamuar, MD; Hannah Kim, PhD; Audrey Lebret, PhD; Angus Macdonald, PhD; Timo Minssen, LLD; Jamal Nasir, PhD; Dianne Nicol, PhD; Pilar Nicolás, PhD; Margaret Otlowski, PhD; Athira P. S. Nair, PhD; Anya E. R. Prince, JD; Mark Rothstein, JD; Rosalyn Ryan, MBA; Guillaume Sillon, MSc, MPH; Kshitij K. Singh, PhD; Ian Stedman, PhD; Jane Tiller, PhD; Ine Van Hoyweghen, PhD; Ma’n H. Zawati, PhD; Yann Joly, PhD (2024) 'The Key Features of a Genetic Nondiscrimination Policy'. JAMA Network Open, 7 (9):1-12. [DOI]
	2022	Golinghorst, D.; De Paor, A.; Joly, Y.; MacDonald, A.S.; Otlowski, M.; Peter, R.; Prince, A.E.R. (2022) 'Anti-Selection & Genetic Testing in Insurance: An Interdisciplinary Perspective'. Journal of Law, Medicine and Ethics, 50 . [Link] [DOI]
	2022	(2022) 'Comment on Informing relatives of their genetic risk: an examination of the Belgian context'. EUROPEAN JOURNAL OF HUMAN GENETICS (PRINT), 30 :749-751. [DOI]
	2021	Yann Joly 1, Katherine Huerne 1, Mykhailo Arych 2, Yvonne Bombard 3, Aisling De Paor 4, Edward S Dove 5, Palmira Granados Moreno 1, Calvin W L Ho 6, Chih-Hsing Ho 7, Ine Van Hoyweghen 8, Hannah Kim 9, Audrey Lebret 10, Timo Minssen 11, Katharina Ó Cathaoir 10, Anya E R Prince 12, Athira P S Nair 13, Margaret Otlowski 14, Michael S Pepper 15, Rob Sladek 16, Lingqiao Song 1, Torsten H Voigt 17, Ma'n H Zawati 1, Gratien Dalpé (2021) 'The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination'. Trends in Genetics, 37 (11):951-954. [DOI]
	2020	Yann Joly, Gratien Dalpé, Charles Dupras, Bénédicte Bévière-Boyer, Aisling de Paor, Edward S. Dove, Palmira Granados Moreno, Calvin W. L. Ho, Chih-Hsing Ho, Katharina Ó Cathaoir, Kazuto Kato, Hannah Kim, Lingqiao Song, Timo Minssen, Pilar Nicolás, Margaret Otlowski, Anya E. R. Prince, Athira P. S. Nair, Ine Van Hoyweghen, Torsten H. Voigt, Chisato Yamasaki & Yvonne Bombard (2020) 'Establishing the International Genetic Discrimination Observatory'. Nature Genetics, 52 :466-468. [DOI]
	2018	De Paor, A. (2018) 'Genetic risks and doctors' disclosure obligations - Revisiting the duty of confidentiality'. European Journal of Health Law, 25 . [Link] [DOI]
	2017	Aisling de Paor (2017) 'Direct to Consumer Genetic Testing: Law and Policy Concerns in Ireland'. IRISH JOURNAL OF MEDICAL SCIENCE (ONLINE), .
	2017	Aisling de Paor; L. Kalokairinou; H.C. Howard; S. Slokenberga; C.M.R. Casabona; E. Fisher; M. Flatscher-Thöni; M. Hartlev; R. van Hellemondt; J. Juškevičius; J. Kapelenska-Pregowska; P. Kováč; L. Lovrečić; H. Nys; A. Phillips; L. Prudil; E. Rial-Sebbag; J. Sándor; A. Schuster; S. Soini; K.H. Søvig; D. Stoffel; T. Titma; T. Trokanas; P. Borry (2017) 'Legislation of Direct-to-Consumer Genetic Testing in Europe: A Fragmented Regulatory Landscape'. Journal of Community Genetics, .
	2017	Aisling de Paor, John Danaher; Michael Hogan.; Chris Noone; Ronan Kennedy; Anthony Behan; Heike Felzmann; Muki Haklay; Soo- Ming Khoo; John Morison; Maria Helen Murphy; Niall O'Brolchain; Burkhard Schafer; Kalpana Shankar (2017) 'Algorithmic governance: Developing a research agenda through the power of collective intelligence'. Big Data & Society, .
	2017	Aisling de Paor and Charles O'Mahony (2017) 'The use of behavioural genetics in the criminal justice system: A disability and human rights perspective'. International Journal of Law and Psychiatry, 54 :16-25.
	2016	de Paor, A.; O'mahony, C. (2016) 'The need to protect employees with genetic predisposition to mental illness? The UN convention on the rights of persons with disabilities and the case for regulation'. Industrial Law Journal, 45 . [Link] [DOI]
	2016	Dr. Aisling de Paor and Dr. Charles O'Mahony (2016) 'Genetic Testing for Mental Illness in Employment – Considering the Legal Framework in Ireland'. IRISH EMPLOYMENT LAW JOURNAL, 13 (3):61-88.
	2016	Dr. Aisling de Paor and Prof. Peter Blanck (2016) 'Precision Medicine and Advancing Genetic Technologies – Disability and Human Rights Perspectives'. Laws, 5 (3).
	2015	Dr. Aisling de Paor (2015) 'The Irish Legislative Response to Genetic Discrimination – an analysis of Part 4 of the Disability Act 2005: time for reform?'. Dublin University Law Journal, 38 :129-156.
	2015	Dr. Aisling de Paor and Dr. Delia Ferri (2015) 'Regulating Genetic Discrimination in the European Union: Pushing the EU into Unchartered Territory or Ushering in a New Genomic Era?'. EUROPEAN JOURNAL OF LAW REFORM, 17 .
	2015	Dr. Aisling de Paor (2015) 'International Human Rights Perspectives on the Protection of Genetic Information - Exploring the Scope and Impact of the Current United Nations Framework'. JOURNAL OF LAW AND PUBLIC POLICY, 2 :16-42.
	2014	Dr. Aisling de Paor (2014) 'Regulating Genetic Information—Exploring the Options in Legal Theory'. 21 :425-453.
	2014	De Paor, A. (2014) 'Regulating genetic information - Exploring the options in legal theory'. European Journal of Health Law, 21 . [Link] [DOI]
	2013	Dr. Aisling de Paor (2013) 'The Regulation of Genetic Information in Ireland—does it Strike an Appropriate Balance of Rights?'. Medico-Legal Journal of Ireland, 19 :97-106.
	2013	Dr. Aisling de Paor (2013) 'US and EU Perspectives on Genetic Discrimination in Employment and Insurance: Striking a balance in a battlefield of competing rights'. EUROPEAN YEARBOOK OF DISABILITY LAW, 4 :99-144.
	2018	Aisling de Paor (2018) 'Genetic Risks and Disclosure Obligations on Doctors – Revisiting the Duty of Confidentiality'. European Journal of Health Law, .
	2017	Danaher, J.; Hogan, M.J.; Noone, C.; Kennedy, R.; Behan, A.; De Paor, A.; Felzmann, H.; Haklay, M.; Khoo, S.M.; Morison, J.; Murphy, M.H.; O'Brolchain, N.; Schafer, B.; Shankar, K. (2017) 'Algorithmic governance: Developing a research agenda through the power of collective intelligence'. Big Data and Society, 4 . [Link] [DOI]
	2017	Aisling de Paor and Charles O'Mahony (2017) 'The Use of Behavioural Genetics in the Criminal Justice System: A Disability & Human Rights Perspective'. International Journal of Law and Psychiatry, .
	2017	Dr. Aisling de Paor (2017) 'Genetic Discrimination – a case for a European Level Legal Response'. European Journal of Health Law, .
	2016	Dr. Aisling de Paor and Dr. Charles O'Mahony (2016) 'Protecting the Rights of Employees with Genetic Predisposition to Mental Illness: The UN Convention on the Rights of Persons with Disabilities & the Case for Regulation'. Industrial Law Journal, 45 (4):525-555.

Other Journal

	Year	Publication
	2016	Dr. Aisling de Paor (2016) 'The Legal Consequences of Genetic Prediction' 23 (2) .
	2012	Dr. Aisling de Paor & Michael Waterstone (2012) 'Gene Genie – Don’t become a victim of genetic discrimination' .

Conference Contribution

	Year	Publication
	2023	Aisling de Paor (2023) Genetic Discrimination Observatory Annual Conference Genetic Discrimination – recent law and policy concerns in Ireland Panama City, Panama, 11/12/2023-12/12/2023.
	2017	Dr Aisling de Paor (2017) American Society of Human Genetics Annual Meeting Genetic Testing in the Criminal Justice System: human rights perspectives San Diego, USA, 18/10/2017-20/10/2017.
	2016	Dr. Aisling de Paor (2016) World Association of Medical Law Annual Congress Direct to Consumer Genetic Testing- Ethical, Legal and Regulatory Issues in Europe Los Angeles, USA, 08/08/2016-11/08/2016.
	2016	Dr. Aisling de Paor (2016) COST Action: Who has the right to my genome? ELSI challenges of citizen participation and public private partnerships in genomics Genetic Discrimination and Access to the Genome Leuven, Belgium, .
	2016	Dr. Aisling de Paor (2016) Algorithmic Governance Workshop Algorithmic Governance and Genetic Information NUI Galway, Galway, Ireland, 18/03/2016-18/03/2016.
	2016	Dr. Aisling de Paor (2016) SynBio Future Axioms Conference Genetics, Law & Regulation – Current and Future Perspectives in SynBio University College Cork, Cork, Ireland, 22/02/2016-22/02/2016.
	2015	Dr. Aisling de Paor (2015) American Society of Human Genetics Annual Meeting Direct- to- Consumer Genetic Testing- Navigating the minefield of ethical and legal dilemmas and considering regulation in Europe Baltimore, USA, 07/10/2015-09/10/2015.
	2015	Dr. Aisling de Paor (2015) European Association of Health Law Annual Conference Genetic Discrimination: A case for a European legislative response Prague, Czech Republic, 01/10/2015-02/10/2015.
	2014	Dr. Aisling de Paor (2014) Review of the Operation of Part 4 of the Disability Act: Setting the Context International Responses and Comparative Legislative Frameworks on Genetic Testing Dublin, Ireland, 30/09/2014-30/09/2014.
	2014	Dr. Aisling de Paor (2014) COST Action: Genetic Testing Workshop Emerging Legal Issues and the Regulation of Genetic Testing Dublin, Ireland, 28/11/2014-28/11/2014.
	2014	Dr. Aisling de Paor (2014) American Society of Human Genetics Annual Meeting The Protection of Genetic Privacy in the European Union – the Proposed Data Protection Reforms San Diego, USA, 14/10/2014-18/10/2014.
	2013	Dr. Aisling de Paor (2013) Association of European Cancer Leagues, Annual Conference: ‘State of the Art in Genetics, Genomics and Cancer Ethical issues surrounding emerging genetic technology Ljubjana, Slovenia, 28/11/2013-28/11/2013.
	2013	Dr. Aisling de Paor (2013) Association of European Cancer Leagues, Bi- Annual Meeting Disability legislation and cancer patients in the European Union Brussels, Belgium, 05/03/2013-05/03/2013.
	2013	Dr. Aisling de Paor (2013) Centre for Society & the Life Sciences and the Department of Health, Ethics and Society, Maastricht University - Symposium: Exploring Dilemmas of Genomic Health Information in Private Life Insurance Disability perspectives on genetic discrimination in insurance Utrecht, the Netherlands, 28/03/2013-28/03/2013.
	2012	Dr. Aisling de Paor (2012) Genetic Discrimination – Transatlantic Perspectives on the Case for a European Level Legal Response Organised conference at European Parliament European Parliament, Brussels, Belgium, 06/03/2012-06/03/2012.
	2012	Dr. Aisling de Paor (2012) European Society of Human Genetics Annual Conference What is the appropriate regulation of genetic discrimination? Weaknesses and strengths of various approaches Nuremberg, Germany, 25/06/2012-25/06/2012.
	2012	Dr. Aisling de Paor (2012) American Society of Human Genetics, Annual Meeting Genetic discrimination and the United Nations Convention on the Rights of Persons with Disabilities San Francisco, USA, 06/11/2012-10/11/2012.
	2011	Dr. Aisling de Paor (2011) Centre for Criminal Justice and Human Rights Postgraduate Conference ’Genetic discrimination by employers and insurance companies – a battlefield of fundamental human rights University College Cork, Cork, Ireland, 28/04/2011-28/04/2011.
	2011	Dr. Aisling de Paor (2011) Irish Society of Comparative Law Third Annual Conference Genetic discrimination- the position in the United States: A Novel Approach to Anti- Discrimination Law University College Dublin, Dublin, Ireland, 30/04/2011-30/04/2011.
	2011	Dr. Aisling de Paor (2011) Scottish Young Legal Researchers Colloquium 'Nobody has perfect genes – the need to protect against genetic discrimination University of Dundee, Scotland, 22/04/2011-22/04/2011.
	2011	Dr. Aisling de Paor (2011) 12th International Congress of Human Genetics The regulation of genetic discrimination at European Level: What can we learn from international legislative efforts? Montreal, Canada, 11/10/2011-15/10/2011.
	2011	Dr. Aisling de Paor (2011) Genetic Discrimination – Transatlantic Perspectives on the Case for a European Level Legal Response Organised conference NUI Galway, Galway, Ireland, 19/11/2011-19/11/2011.
	2010	Dr. Aisling de Paor (2010) Irish Association of Law Teachers Annual Conference Genetic discrimination by employers and insurance companies- the need for regulation Limerick, Ireland, 24/11/2010-24/11/2010.
	2010	Dr. Aisling de Paor (2010) Global Ph.D & Researchers Colloquium on Disability Law and Policy Genetic discrimination in the employment and insurance fields – an introduction Galway, Ireland, 26/04/2010-27/04/2010.

Published Report

	Year	Publication
	2012	Dr. Aisling de Paor and Prof. Gerard Quinn (2012) The New Transatlantic Agenda and the United Nations Convention on the Rights of Persons with Disabilities: Taking the US/EU Dialogue to a New Level. US International Council on Disability, .

Thesis

	Year	Publication
	2013	Dr. Aisling de Paor (2013) Advancing Science and Controlling the Misuse of Genetic Information in Employment and Insurance – Towards an Effective European Union Regulatory Framework. National University of Ireland, Galway: THES

Working Paper

	Year	Publication
	2014	Dr. Aisling de Paor (2014) Review of the Operation of Part 4 of the Disability Act 2005 (Genetic Testing). WP
	2012	Dr. Aisling de Paor (2012) Submission to the Council of Europe on a Consultation Document on ‘Predictivity, Genetic Testing and Insurance’. WP
	2012	Prof. Gerard Quinn et al (Centre for Disability Law & Policy, NUI Galway) (2012) Submission to the Law Reform Commission (various legal topics including genetic privacy and data protection and genetic discrimination). WP
	2012	Prof Gerard Quinn et al (Centre for Disability Law & Policy, NUI Galway) (2012) Enhancing Access to Justice by Harnessing the Potential of Clinical Legal Education in Ireland. WP

Conference Publication

	Year	Publication
	2017	De Paor, A. (2017) *Genetic Discrimination: A Case for a European Legislative Response?* [Link] [DOI]

Other Publication

	Year	Publication
	2022	de Paor, Aisling (2022) Disability, Health, Law and Bioethics. [DOI]

Professional Associations

	Association	Function	From / To
	Law Society of Ireland	Qualified Solicitor	04/05/2009 -

Education

	Start date	Institution	Qualification	Subject
		National University of Ireland, Galway	PhD
		University College Cork	LLM
		National University of Ireland, Galway	BCL
		National University of Ireland, Galway	Diploma

Research Interests

Medical law and bioethics; genetic discrimination and the law; genetic privacy and data protection; science, new technologies and the law

Modules Coordinated

Term	Title	Subject
2022	Moot Court	LG124
2022	Genetics, Law and Society	LG3720
2021	Medical Law and Bioethics	LG5017